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FUNCTIONALITY, DISABILITY AND HEALTH
PAGE INDEX
THE FIRST DOCUMENT OF THE WORLD HEALTH
ORGANIZATION.(ICIDH)
First of all, a little background
history: in 1980 the World Health Organization published an
initial document titled International Classification
of Impairments, Disabilities and Handicaps (ICIDH).
In this publication there was an important distinction between
impairment (described as a loss or abnormality of physical
bodily structure or function, of logic-psychic origin, or
physiological or anatomical origin) and two other forms of
disability.
These were respectively
defined as: any limitation or function loss deriving from
impairment that prevents the performance of an activity in
the time-lapse considered normal for a human being. 'Handicap'
is the disadvantaged condition deriving from impairment or
disability limiting a person performing a role considered
normal in respect of their age, sex and social and cultural
factors. The following list of the main groups of definitions,
might help better understand the difference between the terms.
ICIDH
Impairment
- Impairment of intellectual ability.
Other psychological impairment. Impairment of language and
wording.
- Hearing impairment.
- Visual impairment.
- Organs impairment.
- Bone impairment.
- Scarring and aesthetic impairments.
- Generalised impairments, sensory
and of other kind.
Disability
- Behavioural Disability
- Disability of communication
- Disability in caring of oneself
- Disability of movement
- Disability due to body assets,
Disability of dexterity
- Disability of circumstance
- Disability within specific activities
- Other restrictions to ability.
Handicap
- Handicap of orientation.
- Handicap of physical independence
- Handicap of mobility
- Occupational handicaps
- Handicap in social integration
- Handicap in economic self-sufficiency
- Other handicaps
For example, according
to the above definitions, a blind person is a person with
a visual impairment which gives him a disability of communication,
of movement, and involves a handicap of mobility and an occupational
disability, just to mention the most important aspects. Therefore
just one kind of impairment can cause multiple disabilities
and imply several handicaps.
Similarly, a certain
kind of handicap can be tied to several disabilities which
in turn can derive from one or more impairments. While for
the individual, the impairment has a permanent aspect, disability
would depend from the activity the individual wishes to uptake.
The handicap aspect is the disadvantage he encounters in relations
with other individuals, so called 'able' people. A paraplegic
person will certainly experience a handicap when wishing to
play football, but practically won't experience it while using
a personal computer.
THE
NEW DOCUMENT OF THE WORLD HEALTH ORGANIZATION (ICF)
The significant aspect
of the first WHO document, is that of being able to associate
the state of an individual not only to structures and functions
of the human body, but to link it to activities and participation
to social life of an individual.
The second document
entitled International Classification of Functioning,
Disability and Health. (ICF). The title already
is indicative of a substantial change in the way one confronts
him or herself with the problem of presenting a unified language
to describe the state of a person.
There are no more referrals
to a functional or structural problem, without it being related
to a state considered 'healthy'.
As one can see from
the transcribed tables below, (this is not the official italian
translation of the document). the new document substitutes
terms such as impairment, disability and handicap, as terms
that indicate something 'missing' preventing a full function
of the body. Other terms of the new perspective are:
ICF
Bodily Functions
- Mental Functions
- Pain and sensorial functions
- Function of the voice and speaking
- Functions of the cardio-vascular,
ematologic, immunologic and respiratory systems
- Functions of the digestive, metabolic
and endocrinal systems
- Genito-urinal and reproductive
functions. Neuro-muscular- scheletal functions tied to movement,
functions.
- Functions of the skin and associated
structures.
Bodily Structures
- Structures of the nervous system
- Eye, Ear and connected structures
- Structures of voice and speaking
- Structures of cardio-vascular,
immune and respiratory systems
- Structures of the digestive, metabolic
and endocrinal systems
- Structures of the genito-urinary
and reproductive systems
- Structures connected to movement
- Skin and associated structures.
Participation and activity
- Learning of knowledge and its
application
- Homework and requests of general
character
- Communication
- Mobility
- Care of one-self
- Domestic life
- Interactions and personal relationships
- Life's main areas
- Community, civic and social
life
Environmental factors
- Technology and Products
- Natural environment and man-made
chances
- Support and relationships
- Attitudes
- Services, systems and policies
Bodily functions are
physiologic functions of bodily systems, including psychological
functions. Bodily structures are anatomical parts of
the body such as organs, limbs and their components. Activities
is the execution of an action on behalf of an individual.
Participation is the involvement of the individual in a life
situation. Environmental factors are characteristics of the
physical and social world and the attitudes that can have
an impact in the individual's life. Classification as above
shown, stops at the first two levels, however in the WHO's
document there are more detailed levels extending classifications
into further sub-classifications. At every level of classification
a code is assigned.
So, for example, the classification
b11420 in inserted in the following level gerarchy:
b
Bodily structures
b1 Mental functions
b11 Global mental functions
b114 Orientation functions
b1142 Orientation towards others
b11420 Orientation towards one-self.
To this classification
is associated the definition of mental functions producing
awareness of one's identity. The ICF document, covers all
aspects of human health, grouping them under the main 'health
domain' inclusive of sight, hearing, walking, learning and
remembering as well as those domains connected to the health
domain, like mobility, learning, social life and so on. It
is very important to clarify the following: ICF does not relate
only to people with disabilities but to everyone, therefore
it has universal use and value. In relation to the hundred
of 'voices' of classification to each individual can be associated
one or more qualifying 'voices' quantifying his functionality.
As for bodily functions and structures, the qualifying voice
can assume the following values:
| 0-4% |
0 |
No
impairment |
| 5-24% |
1 |
Light
impairment |
| 25-49% |
2 |
Moderate
impairment |
| 50-95% |
3 |
Serious
impairment |
| 96-100% |
4 |
Total
impairment |
| |
8 |
Non
specified |
| |
9 |
Non
applicable |
Similar classification
exists for activities for which there are restrictions and
for participation for which limitations can exist. Finally,
in relation to environmental factors, there are barriers.
The 'positive' classification starting from functionality,
has the advantage of not having to specify the causes of an
impairment or disability, but it only indicates its effects.
It should be noted that since the word 'handicap' has been
abandoned, the meaning of the word disability has been expanded
to cover the restriction of activity as well as limitation
to participation.
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WORDS THAT MAKE A DIFFERENCE
By Andrea Canevaro
Attention paid to words is important, not
only for aesthetic or formal reason, but because words
contain the operative model to which we refer.
In
this case it's very important not to confuse deficit,
disability and handicap: the use of improper terms
and linguistic confusion can be a way to increase
handicap instead of reducing it.
The
person at the centre of our definitions, whom we call
in various ways (handicapped, in a situation of handicap,
disabled) and each of these definitions has its advantages
and disadvantages.
The
starting point however must be clear: the individual
is relatively handicapped, meaning that handicap
is a relative notion and not an absolute, on the contrary
of what can be said about the word deficit. In other
terms, an amputation cannot be denied and it's therefore
an absolute; the disadvantage (handicap) is instead
related to the living and working condition of the
individual, in one word, in the reality in
which the individual is placed.
Handicap
is therefore a meeting between the individual and
the situation. It is a reducible disadvantage or,
unfortunately, it can increase also. These thinking
leads us to understand how important the World Health
Organization's definitions are as they take into account
the distinction indicated.
The
new ICF* is a coherent development of this
thinking,
because it does not negate the framework already
given,
it actually puts into evidence the proposing aspects
and the value of the individual. The reversal of
terms,
speaking in positive terms (of functions, structures,
activities and participations, instead of
impediments, disability, handicap) is a very important step in
this direction. Observing the key words in this international
classification, one must notice that the term
disability, once
used in the 1980 version, has been substituted by
activity, and
that handicap
has been substituted by the word participation,
and this indicates the positive transformations
implied.
Other terms used are health conditions, impairments,
limitation to activity, restriction to participation,
contextual factors, environmental factors, personal
factors. This builds up a scheme that sees activity
at its centre, which can be more or less developed
according to the personal situation of individuals
but also according to the influence of their external
world.
*original edition
1999, available in full version at Erickson Editions,
Trento, 2000.
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