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FOR AN
OPTIMAL RELATIONSHIP WITH:
PEOPLE WITH EPILEPSY AND PEOPLE WITH AUTISM
PAGE
INDEX
EPILEPSY
Epilepsy is a word many people
have heard but often do not know its true meaning.
What is an epileptic fit?
An epileptic fit represents the manifestation of the illness:
it is set off by the excessive activity of brain cells, with
an effect comparable to a sudden electric shock in the brain
or in a part of it. The fit starts suddenly and stops more
or less rapidly. Between a fit and another fit there are generally
no symptoms. For epilepsy to be accurately diagnosed, one
must have had at least two fits and the fits themselves need
to have more or less a specific duration.
How can I recognise an epileptic
fit?
Epileptic fits can be different and varied: they can be disturbances
of the consciousness, with unsual movements and sensations,
depending on the affected brain area. There might be a disturbance
in the areas controlling movement, or the heart, the breathing,
language and emotions, as well as areas that are essential
for memory, learning and thinking.
Usually, when we think about
epilepsy, we immediately think about the loss of consciousness,
the fall and violent tremors in the whole body of the affected
person - typical symptoms of the 'grand mal'. However there
are many ways in which the illness shows itself and a knowledge
of the different possible manifestations is useful when trying
to identify the type of epilepsy so that it can be treated
as early as possible.
Some data:
Approximately 5-10 children in every 100 become epileptic.
About 20% of affected people
start to have syptomes by their 5th year of life, in 50% of
cases it develops before the 25th year of age. Usually in
the 65-85% of children affected, it is not possible to establish
the cause of the illness. A third of the children usually
heal and do not have symptoms after adolescence.
Thanks to therapeutic developments
of recent years, over half the people affected are already
experiencing remission after the first year. In any case all
people with epilepsy can be helped in reducing symptoms as
the range of pharmaceutical treatments is improving all the
time. With an epileptic child, the contribution of the entire
family is especially crucial.
How can parents be affected
by their epileptic child?
Often parents become anxious and tend to be over-protective.
This attitude can be damaging for the development of self-esteem
in the child and can cause them embarassment and fear at being
treated differently due to their condition. It
is important to speak openly with the child and offer him
or her reassurance. This helps them accept their condition
and live happily like every other child.
USEFUL
INFORMATIONS IN THE EVENT OF A FIT
In the event of a fit, the following
steps should be taken:
- If the person falls over,
let them lie on their side without blocking their movements.
- Put something soft under their
head
- Observe carefully what happens
during the fit
- Wait until the crisis has
passed
- Help calm and relax the person
when he/she is conscious again
In the event of a fit, it
is advisable to call the doctor only when:
- The fit is lasting more than
5 minutes
- The person has great difficulty
in gaining consciousness again
- There is a second fit
- There are breathing difficulties
- The person has injured themself
AUTISM
Autistic people assume different
behaviours. Some are very introverted and this is why the
term autism was created (auto is latin for 'the self').
Others assume behaviours that necessitate repetition of gestures,
words and have constant repetitive points of reference. They
do not seem so much introverted as they seem to be mentally
organised in such a way that they cannot free themselves of
repetition or be able to cope with new situations.
There are different characteristics
to these syndromes, therefore scientists prefer the term in
its plural form: 'autisms' that can be reduced to a main difficulty:
reciprocity. They have great difficulty in reciprocating with
other people and they need clear points of reference, time
and space clearly defined help them greatly, especially in
establishing relationships. Communication is easier within
this framework and searching for interaction with an autistic
person is definitely easier if we are clear in our language
and forthcoming. Even though it might seem that our efforts
are not understood immediately, there will be the possibility
that they will be understood later.
Understanding cannot always be
confirmed by the autistic person because of this difficulty
in reciprocating, therefore communication needs perseverance,
whilst maintaining respect for their dignity by choosing clear
and firm attitudes that are also warm, at ease and open to
new developments.
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